tag:blogger.com,1999:blog-16774010.post6373738643899664362..comments2024-01-25T17:58:34.297-05:00Comments on Scott's Web Log: Perceptions vs. RealityScott Shttp://www.blogger.com/profile/03286529314567223617noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-16774010.post-62558812766739460432009-04-08T10:35:00.000-04:002009-04-08T10:35:00.000-04:00I was watching a program the other day on D-channe...I was watching a program the other day on D-channel this is a show dedicated to diabetics supposedly. Towards the end they had a parade of celebrities chanting test often test often people like Brett Michaels from Poison “now there is a poster boy for proper control” its things like this that piss me off. They don’t need to be chanting at me! I have enough motivation by simply wanting to live. They need to be chanting Find a cure!!! Find a cure!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16774010.post-4156343342844616292008-04-18T22:28:00.000-04:002008-04-18T22:28:00.000-04:00Very powerful post. Thank you so much for writing ...Very powerful post. Thank you so much for writing this. It needs to be said. It needs to be heard.Susana la Bananahttps://www.blogger.com/profile/01625149392915396947noreply@blogger.comtag:blogger.com,1999:blog-16774010.post-5202799043532650632008-04-13T14:34:00.000-04:002008-04-13T14:34:00.000-04:00Scott - Great post!Diabetes,both 1 and 2, are mone...Scott - <BR/><BR/>Great post!<BR/>Diabetes,both 1 and 2, are money makers to say the least.<BR/>Thanks for the info!<BR/>k2k2https://www.blogger.com/profile/04167099133092135850noreply@blogger.comtag:blogger.com,1999:blog-16774010.post-71538473409094588742008-04-11T16:56:00.000-04:002008-04-11T16:56:00.000-04:00Awesome post. The graphics bring home the point. ...Awesome post. The graphics bring home the point. Thanks Scott.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16774010.post-72650956835859126882008-04-10T18:17:00.000-04:002008-04-10T18:17:00.000-04:00Scott--The above graphic is POWERFUL. Each diabeti...Scott--<BR/><BR/>The above graphic is POWERFUL. Each diabetic who is unwilling to sit back and accept whatever is pushed at them as the latest and greatest treatment or accept that "numbers" used to judge his/her success are control mechanisms for their caregivers SHOULD present his/her physician with a copy. Diabetes DEMANDS physician-patient partnership; and if the partner isn't part of the solution . . . he is part of the problem.<BR/><BR/>Thanks for the graphic.<BR/><BR/>MelodyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-16774010.post-25643267766682631732008-04-10T16:21:00.000-04:002008-04-10T16:21:00.000-04:00Scott,I just wanted to say this is a great post.I ...Scott,<BR/><BR/>I just wanted to say this is a great post.<BR/><BR/>I have often said that as long as we act like diabetes is no big deal then it will continue to get treated like no big deal.<BR/><BR/>My son was diagnosed at 3. Without a cure the odds are stacked against him no matter how fiercly he cares for his disease. Chances are that he will die from this disease. Tears are streaming down my face as I type that.<BR/><BR/>Sugar coating the facts does not help anyone. We are lying to the public and most importantly we are lying to ourselves.Penny Ratzlaffhttps://www.blogger.com/profile/03368479901015692591noreply@blogger.comtag:blogger.com,1999:blog-16774010.post-25052851313674996632008-04-10T14:21:00.000-04:002008-04-10T14:21:00.000-04:00Scott & Jenny—We are in agreement about what the p...Scott & Jenny—<BR/><BR/>We are in agreement about what the pharmaco/medico community is doing to ALL diabetics. Like you, I know that the various forms of carbohydrate will raise my bG disproportionately to the amount exogenous insulin available. However, have you ever thought about the possibility that the insulin cartel, our doctors, and even our ‘charities’ recognize something which most patients do not. Today’s fast-acting, sharply-peaked insulins ARE an accident waiting to happen—figuratively and literally. Insulin, in Type 1’s, is calculated on the number of carbs eaten (or to be eaten) in the next one-two hours. For most active T1’s, an equivalent amount of calories from protein or fat or complex carbs may not be sufficient to cover a peak of insulin. Combine that with overlapping, intermediate/long-lasting insulin and most MD’s are at a point where they recommend a patient eat readily-available carbs in order to protect THEM (the doctors/cartel) from liability.<BR/><BR/>Jenny, I don’t know enough about T2 diabetes, but I do have several friends that are, or were, Type 2. When their doctors started mixing pills/one to two types of insulin/Byetta and, of course, other criteria to keep blood sugars within a normal range, they ALL started running into serious low bG’s. A good diet was not sufficient to keep these ‘lows’ from occurring. Carbs, then, were recommended to ‘save them’ from all their medications.<BR/><BR/>Today’s insulins are so fast-acting and peaky that doctors recommend high-carb diets to protect the patient from the drug. At the same time, the doctor/insulin cartel are more than happy to promote high carb diets because it sells more insulin.<BR/><BR/>--BrentAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-16774010.post-34569899585730614302008-04-10T11:38:00.000-04:002008-04-10T11:38:00.000-04:00Brent and Jenny,Interestingly enough is the fact t...Brent and Jenny,<BR/><BR/>Interestingly enough is the fact that there IS a common thread between both of your responses, and that is the fact that diabetes is not viewed as a disease, but a business! The ADA is perhaps most guilty of this, but they are hardly the only ones.<BR/><BR/>The example I like to cite because its so blatant is the fact that Log Cabin syrup has the ADA logo proudly displayed on it. Now, it may be a sugar-free version of the regular product, but consider what it is most commonly used with: waffles and pancakes, which are as close to pure carbs (refined white flour is the core ingredient in both), and somehow no one questions whether this "sponsorship" is appropriate or sends the right message? Patients get that, but an association of doctors and nurse educators should be ashamed of themselves!<BR/><BR/>The bottom line is that diabetes and the patients who have it are sometimes lost in the evaluation of any of these things, whether its new drugs or food endorsements, one has to wonder where the patient's perspective is evaluated? Today, we're viewed as cash machines, not people, and until that perception changes, we're likely to see more of the same!<BR/><BR/>Regards,<BR/>ScottScott Shttps://www.blogger.com/profile/03286529314567223617noreply@blogger.comtag:blogger.com,1999:blog-16774010.post-85670645349294601812008-04-10T11:28:00.000-04:002008-04-10T11:28:00.000-04:00Don't forget that since 1992 the ADA has campaigne...Don't forget that since 1992 the ADA has campaigned tirelessly against letting patients with diabetes know that it is carbohydrates that raise blood sugar and that the key to better control is cutting back on carbs to where you can match them to insulin without making a hypo almost automatic if you don't calculate carbs properly.<BR/><BR/>The ADA "tight control" web page for Type 1s still does not mention the word "carbohydrate."<BR/><BR/>I hear on a daily basis from people with Type 2 whose doctors tell them they are overreacting when they demand help in getting their A1c below 7.2%. Some doctors refuse to give any therapy to a Type 2 with that A1c because they insist it isn't necessary thanks to the ADA's refusal to educate the public about how Type 2s get many more complications at that a1c level than do Type 1s. <BR/><BR/>I hear from patients with Type 2 whose doctors put them on insulin at doses that are literally 1/2 of what they need and because of fear of hypo leave them with fasting blood sugars over 200 mg/dl.<BR/><BR/>A cure would be nice. But we could lower the incidence of complications enormously just by educating the family doctors who treat most Type 2s about what good control REALLY means. <BR/><BR/>And teaching them that lowering carbs is step one. Tragically, most doctors still believe that fat is what kills people with diabetes, not carbs. And they still recommend the low fat diet that has been proven ineffective for anything but worsening health.Jennyhttps://www.blogger.com/profile/17384082448952856117noreply@blogger.comtag:blogger.com,1999:blog-16774010.post-78116202413929960572008-04-10T10:53:00.000-04:002008-04-10T10:53:00.000-04:00Scott—Having read Deb Butterfield’s book, and know...Scott—<BR/><BR/>Having read Deb Butterfield’s book, and knowing the consternation she has experienced over the years living with diabetes, I can only re-emphasize the fact that these words—written 15 years ago—are truer today than they were then.<BR/><BR/>The last endo that I fired was tired of hearing me tell him the care he was offering was inadequate. He finally blurted out in disgust, “You have to understand, as a diabetic, this is a malignant disease.” That was a mouthful to hear coming from your caregiver, who in actuality lumped diabetes in the same group as cancer—indicating the patient should expect (and accept) the worst. <BR/><BR/>I’ve always felt that it was self-righteous, selfish and embarrassing to be put in a position where in order to get funding for a cure, your disease has to be considered worse than someone else’s disease. I think somewhere in our Constitution there was a failure to mention that all patients should have equal opportunity to receive quality care and opportunity for cure advancement.<BR/><BR/>I would reiterate the fact that less than one percent of all people who contract Type 1 diabetes ever reach their 50-year survival anniversary. Another way to express this is over 99% will get blamed for not taking care of themselves or living up to their doctor’s expectations.<BR/><BR/>ARE WE ALL A BUNCH OF MUSHROOMS? Do we—by our silence--CHOOSE to be kept in the dark and fed a bunch of (corporate/medical) bullshit.<BR/><BR/>--BrentAnonymousnoreply@blogger.com